ADDS YEAR AND LOCATION PHOTO WAS TAKEN – In this 2016 photo provided by Boston Children’s Hospital, Liliana Rojas poses with her son Brandon at his school in New York. Brandon was diagnosed with adrenoleukodystrophy in August 2014. Study results
ADDS YEAR AND LOCATION PHOTO WAS TAKEN – In this 2016 photo provided by Boston Children’s Hospital, Liliana Rojas poses with her son Brandon at his school in New York. Brandon was diagnosed with adrenoleukodystrophy in August 2014. Study results published Wednesday, Oct. 4, 2017, by the New England Journal of Medicine showed an experimental gene therapy treatment seemed to help boys with the inherited nerve disease featured in the movie “Lorenzo’s Oil.” Although the news is bittersweet for the Rojas family, as their other son Brian was able to get the treatment, while Brandon, whose disabilities from the disease had progressed further, was not. (Courtesy of the Rojas Family/Boston Children’s Hospital via AP)
